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$25 Million Gift to Penn Medicine and Children’s Hospital of Philadelphia Establishes Center for Epilepsy and Neurodevelopmental Disorders

$25 Million Gift to Penn Medicine and Children’s Hospital of Philadelphia Establishes Center for Epilepsy and Neurodevelopmental Disorders

PHILADELPHIA—A $25 million gift from an anonymous donor to Penn Medicine and Children’s Hospital of Philadelphia (CHOP) will establish the Center for Epilepsy and Neurodevelopmental Disorders (ENDD),

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2026 STXBP1 Summit+ right here in Philly!

2026 STXBP1 Summit+ right here in Philly!

The ENDD team is excited to participate in Research Roundtable at the 2026 STXBP1 Summit+ right here in Philly! Several ENDD researchers will share their work,

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And the award goes to … Alex!

And the award goes to … Alex!

Adding to his list of honors*, Alex Felix has won the 2026 Alavi-Dabiri Post-doctoral Research Award from the Intellectual and Developmental Disabilities Research Center at CHOP!

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Million Dollar Bike Ride 2026

Million Dollar Bike Ride 2026

The 2026 Million Dollar Bike Ride takes place Saturday, June 13th. Check the MDBR site for more information and to sign up.

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Congratulations, Alex!

Congratulations, Alex!

Alex Felix has won CURE Epilepsy’s Taking Flight Award to advance his work on “Fine-tuning the 3’UTR as a novel therapeutic strategy for genetic Developmental and Epileptic Encephalopathies.”

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ASGCT 2024 STXBP1 recap

ASGCT 2024 STXBP1 recap

Charlene Son Rigby, President and Co-founder of the STXBP1 Foundation, interviews ENDD’s Mike Boland about STXBP1 therapeutic development updates from the annual meeting of the American Society for Gene and Cell Therapy.

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The most personalized medicine: Studying your own child’s rare condition

The most personalized medicine: Studying your own child’s rare condition

From The Transmitter, by Lydia Denworth.

A handful of scientists are committed to advancing research on the autism-related genetic conditions their own children have.

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Watch Ben Prosser and Ingo Helbig’s webinar with STXBP1 Foundation president, Charlene Son Rigby, announcing the Center for ENDD to the STXBP1 community

Watch Ben Prosser and Ingo Helbig’s webinar with STXBP1 Foundation president, Charlene Son Rigby, announcing the Center for ENDD to the STXBP1 community

Penn Medicine and Children’s Hospital of Philadelphia (CHOP) are establishing the Center for Epilepsy and Neurodevelopmental Disorders (ENDD) to accelerate collaborative research in genetic therapies for neurodevelopmental disorders.

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$25 Million Gift to Penn Medicine and Children’s Hospital of Philadelphia Establishes Center for Epilepsy and Neurodevelopmental Disorders

$25 Million Gift to Penn Medicine and Children’s Hospital of Philadelphia Establishes Center for Epilepsy and Neurodevelopmental Disorders

PHILADELPHIA—A $25 million gift from an anonymous donor to Penn Medicine and Children’s Hospital of Philadelphia (CHOP) will establish the Center for Epilepsy and Neurodevelopmental Disorders (ENDD),

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