News & Events

News & Events

$25 Million Gift to Penn Medicine and Children’s Hospital of Philadelphia Establishes Center for Epilepsy and Neurodevelopmental Disorders

$25 Million Gift to Penn Medicine and Children’s Hospital of Philadelphia Establishes Center for Epilepsy and Neurodevelopmental Disorders

PHILADELPHIA—A $25 million gift from an anonymous donor to Penn Medicine and Children’s Hospital of Philadelphia (CHOP) will establish the Center for Epilepsy and Neurodevelopmental Disorders (ENDD),

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Watch Ben Prosser and Ingo Helbig’s webinar with STXBP1 Foundation president, Charlene Son Rigby, announcing the Center for ENDD to the STXBP1 community

Watch Ben Prosser and Ingo Helbig’s webinar with STXBP1 Foundation president, Charlene Son Rigby, announcing the Center for ENDD to the STXBP1 community

Penn Medicine and Children’s Hospital of Philadelphia (CHOP) are establishing the Center for Epilepsy and Neurodevelopmental Disorders (ENDD) to accelerate collaborative research in genetic therapies for neurodevelopmental disorders.

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The Philadelphia Inquirer

The Philadelphia Inquirer

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STXBP1 STARR Study

STXBP1 STARR Study

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Move2Cure

Move2Cure

Walk, run, hike, or bike fundraiser that takes place wherever you are, anytime during September, STXBP1 Awareness month.

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#Sprint4Syngap 2024

#Sprint4Syngap 2024

SynGAP Research Fund’s annual 5k 🏃🏾️ takes place this year on April 27, 2024. Families can set up teams at Syngap.Fund/Sprint24!

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Congrats, Nick, on your review article in Current Problems in Pediatric and Adolescent Health Care!

Congrats, Nick, on your review article in Current Problems in Pediatric and Adolescent Health Care!

In this piece, “Accelerating therapeutic development and clinical trial readiness for STXBP1 and SYNGAP1 disorders,” Nick, Mike, and Ben provide an overview of the disorders’

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